„Neurokind“ – parent self-help: children and teens with neurological diseases
Region: Jena
A few years ago, we founded the self-help group “Neurokind" together with other parents in Erfurt. "Neurokind" we have since expanded and established our own group in Jena. "Neurokind" means children with neurological diseases. We are mothers or/and fathers of a child who is physically, mentally or multiply disabled, developmentally delayed or also suffering from epilepsy.
Goals and tasks
We realize that the exchange and the experience of other families with children with disabilities are very important to us and often help the most when there are problems. And that is what our circle should be about. We want to exchange ideas, help each other in dealing with the disability/illness, in applying for aids, care level, etc. It is also planned to invite guests (doctors, therapists, pharmacies, medical supply stores, nursing services, etc.) to obtain new information.
We invite all parents with "neurochildren" to come to our meetings.
In addition, two members from the group (Strecker family, see below) take over the regional representation for Thuringia of the association INTENSIVkinder zuhause e. V.
Contact at: https://intensivkinder.de/
The group is concerned with families with children in need of the highest level of care, mostly with tracheotomy with and without mechanical ventilation and oxygen.
Group meetings
Every 3rd Wednesday of the month, from 7:30 p.m. - for the parents' regulars' table, you will find the place of the meeting on our homepage in each case.
Downloads
Contact
IKOS Jena - Beratungszentrum für Selbsthilfe Kastanienstraße 11 07747 Jena
Phone: 03641 8741161 Fax: 03641 8741203