Vestibular schwannoma (acoustic neuroma) - Thuringia
Region: Weimar - Thüringen
Disease profile
Was ist ein Vestibularis-Schwannom?
Das Vestibularis-Schwannom, oft auch Akustikus-Neurinom benannt, ist ein gutartiger, sehr langsam wachsender Tumor aus Bindegewebe und Nervengewebe.
Das Vestibularis-Schwannom geht aus Schwannschen Zellen des Gleichgewichtsnervs hervor. Daher kommt der Name des Tumors.
Die Therapie eines Vestibularis-Schwannom richtet sich unter anderem nach seiner Lage und Größe sowie den Symptomen.
Prinzipiell gibt es drei verschiedene Behandlungsmöglichkeiten:
- Abwarten „Wait and scan“
- Operation
- Strahlentherapie
- Für jeden Patienten muss im Einzelfall über die beste Möglichkeit der Behandlung entschieden werden.
Goals and tasks
The self-help group
- Offers help through mutual exchange of experiences, via conversations, information material
- Arranges contacts to physicians as competent contact persons in the region
- Organizes regional meetings in small groups as well as specialized lectures on the disease picture
- Supports the application for rehabilitation measures and the search for suitable rehabilitation clinics
- Offers help with social and psychological problems
You are not alone!
We, too, have had to deal with a brain tumor diagnosis. Fortunately, the therapy options have become better and better in recent years and so have the chances for all of us. In March 2014, we founded our support group. We have all suffered from this benign tumor and know how important it is not to be alone in this difficult situation with many questions and necessary decisions.
Group meetings
The self-support group Vestibularis-Schwannom Weimar meets 4 times a year for an exchange of experiences in a relaxed atmosphere on Fridays at 16:00 in the 1st week of the quarter (March, June, September and December) in Weimar.