The self-help group is in the process of being founded.
Cystic Fibrosis - Regional Group Jena
Region: Jena und Umgebung
The Thuringia regional group consists of parents of children with cystic fibrosis as well as adult cystic fibrosis patients. Our aim is to offer affected families a platform for a lively exchange of experiences, but also to collect donations to support the cystic fibrosis outpatient clinic in Jena and the research projects of Mukoviszidose e.V. Through both active personal and virtual exchange, we would like to contribute to mutual support in life and everyday life with cystic fibrosis.
Disease profile
Cystic fibrosis (CF) is a rare congenital metabolic disease that affects more than 8,000 people in Germany. Cystic fibrosis is not curable.
Mukoviszidose e.V. has been supporting people with the disease for almost 60 years, connecting doctors, other practitioners and sufferers. On our website you will find quality-checked and citable information about cystic fibrosis.
Group meetings
The group meets once a quarter. Please ask for dates by e-mail.
Contact
Vorsitzender Mr Marcus Meuschke
Kassenwart Mr Martin Bauer